Personalised medicine and beyond: Supporting a data-driven healthcare system

In Denmark, we are highly committed towards implementing personalised medicine across our healthcare system. We have successfully established a national infrastructure for offering whole genome sequencing in health care and storing these genomic data to be utilized in research. However, precision medicine is more than genetic data. Precision medicine is data-driven medicine.

With this conference we will bring together professional experts e.g. researchers and relevant stakeholders to share knowledge and learn from other great Nordic and European initiatives, nourishing the common ambition of facilitating more efficient and precise treatment by utilising health data in the best possible way.

The conference is aimed at a wide national and international audience working within the area of personalised medicine and data-driven healthcare, including patient organisations, clinicians, researchers, industry representatives, politicians, administrative staff and journalists.

The conference is supported by the Novo Nordisk Foundation. 

We will continuously update this page with new information about the conference. The program will be published here soon as the last details are in place, along with an introduction to the speakers.

Sessions

Session 1

From genomic data to personalised medicine: Where are we and what is the goal?

Personalised medicine is more than genetic data. Personalised medicine is data-driven medicine. Therefore, the purpose of this session is to formulate the overall ambitions and goals for a data-driven healthcare system, and to identify barriers and strategies for the dream scenarios to become true.

Meet the speakers below

  • Department of Molecular Medicine & Department of Oncology, Aarhus University HospitalInstitute of BiomedicinePharmacology & Precision MedicineAarhus University

    Britt Elmedal

    Consultant, Associate Professor

    Clinical oncologist and an expert in precision oncology. She is the founder and daily head of Oncology Precision Project Aarhus (OPRA), which is a programme offering comprehensive genomic profiling to cancer patients in order to select targeted therapy. For moving the field of precison oncology forward, access to data, including genomic data, is essential.

  • Rigshospitalet and University of Copenhagen

    Sisse Ostrowski

    Professor, consultant, head of research, head of studies for master program in personalised medicine

    MD and head of research for the largest genetic cohort in Denmark, with interest is in using genetic and health register data to provide precision healthcare, with a specific research focus on sex-differences and inflammation.

  • The Danish Association of the Pharmaceutical Industry (Lif)

    Ida Sofie Jensen

    CEO

    CEO of the Danish Association of the Pharmaceutical Industry. One of their strategic goals are to achieve a national strategy for personalised medicine. They also work for better use of health data as the key to a better and more efficient healthcare system.

  • The Danish Health Data Authority

    Thomas Fredenslund

    Director General

    He has a background as Director of the Danish Agency for IT and Learning for 12 years and has also headed the Digital Taskforce at the Ministry of Finance. He joined the Danish Health Data Authority in November 2023 and is now also leading the process towards establishing Digital Health Denmark.

  • The Danish Health Data Authority

    Jacob Hartmann Sørensen

    Head of Programme

    He has been working in the cross-field between data and IT in local and central government the last 15 years. Between 2020 and 2025 he was worked as Head of Division in the Danish Agency for IT and Learning. Since April 2025 he has been Head of Programme and responsible for implementing the first step in the Danish vision for better use of healthcare data.

  • NHS England

    Dame Sue Hill

    Professor, Chief Scientific Officer for England & Senior Responsible Officer for Genomics in the NHS

    She leads and directs Genomics in the NHS, driving the worldleading programme to deliver an NHS Genomic Medicine Service, with precision medicine and datadriven healthcare at its core, in partnership with academia, industry, and both UK and international governments and initiatives.

  • Karolinska Institutet

    Richard Rosenquist Brandel

    Professor

    Specialist in Clinical Genetics. Director of Genomic Medicine Sweden, a national infrastructure advancing datadriven personalised medicine. Specialising in the application of cuttingedge molecular tools, including multiomics approaches, to hematological malignancies to improve diagnosis, prognosis, and clinical decision-making.

  • The Social Liberal Party

    Stinus Lindgreen

    Member of Parliament

    He has a Ph.D in bioinformatics from the University of Copenhagen and has worked in research for years both in Denmark and abroad. Currently, he is a member of the Danish Parliament and the spokesperson for, among other things, health, digitalisation and research.

Session 2

Infrastructure requirements, data standards and competencies to support personalised medicine and a data-driven healthcare system

This session focuses on unpacking the practical implications when designing and implementing a true data-driven healthcare system. What are the requirements, barriers and bottlenecks regarding it-infrastructures, data standards and competencies both at a local-, national- and EU-level?

Session 3

Exploring ethical and legal perspectives in the development of personalised medicine and a data-driven healthcare system

The design and implementation of a true data-driven healthcare system must be based on a solid legal and ethical foundation. Therefore, the purpose of this session is to explore ethical and legal perspectives in the development of personalised medicine and a data-driven healthcare system in a "data ethical trial" format.

Session 4

Looking forward

For the dream of a true data-driven healthcare system to become true, we must work together, embrace new technologies, make smart investments and prioritize our efforts. Therefore, the purpose of this session is to look into the future of personalised medicine and a data-driven healthcare, and to discuss political priorities and funding possibilities

Practical Information

What:
Danish National Genome Center Conference 2025

Where:
Radisson Blu Scandinavia Hotel, Amager Boulevard 70, 2300 Copenhagen and online

When:
September 8, 2025, from 8:00 AM to 6:30 PM (CET)

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We will livestream the conference and record it on video. Photos will also be taken. Below, you can read more about how we use and store the recordings/photos:

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